Milton Musicians Help Michael P Fight Rare Disease

Published: 2006-02-10
Local artists are coming together in Milton, Ontario, to help one little boy.

Michael Carl Papaioannou is a two-year-old boy with a very rare condition called Lesch-Nyhan Disease (LND), which affects only 1 in 20 million people. According to the website for the Michael P Fund, "LND is an insidious disease, affecting fine and gross motor skills resulting in poor motor control and difficulty with sitting and walking. LND is caused by a genetic mutation of the X chromosome, and is chiefly known by its most devastating symptom, a compulsion to self injure."

So in an effort to help Michael and others like him, some musicians in Milton are putting on a show at the town's Country Heritage Park to help raise funds for the Michael Carl Lesch Nyhan Disease Research Fund at Sick Kids.

Jazz singer Kelly McIntyre will be there. Her Christmas song, "Everything I Need Is Christmas," hit radio stations all over the country when she passed the tune over to Erin Davis, at the time the morning host for EZ Rock in Toronto. Her upcoming album, full of jazz classics and original tunes, comes out early this year.

Also at the benefit will be James Sawyer, a singer-songwriter from Campbellville, Ontario, who wrote a song especially for Michael. Sawyer is recording his debut album, which will be out some time this summer.

So if you're in the Milton area and are interested in the benefit, check it out by calling Melissa or Peter at 519-896-9784. For more information on Michael or the benefit, visit http://www.themichaelpfund.com.

Writer: Michelle Garcia

   

 

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I can't thank you enough for helping my family. I am Michael's Granmother.
The monies from this fundraiser will be going to Sick Kids Hospital LND Research in T.O. When Michael was diagnosed w/ this disease we were, and still are devasted. Our goals are to give Mikey the best life he can possibly have; educate Canadians about how challenging our Health Care and Governments are; and what thousands of families have to face every day with disabled children. We take nothing for granted any more as Mikey has taught us how precious life truly is. Please help Mikey find a cure. This disease is very rare & no funding is put into it's research. We know the cure is in genetics, and we will make a diiference with your help. Thank you for caring about children and their families that you don't even know.
We can do it, with your help, thank you...
Posted by: Anonymous on February 11, 2006
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